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Sonakshi Sinha, Kunal Kapoor help out

Monday, May 13, 2019

In our column last week we mentioned that several Bollywood stars had posted half-pictures of themselves on World Thalassemia Day (8 May) to empathise with the campaign for thalassemia (a genetically transmitted blood disorder) prevention. As it happens two of them -- Sonakshi Sinha and Kunal Kapoor are actively involved in the campaign against the disease. In our subsequent online interview with Sonakshi, the actress mentioned that she got involved with the campaign after she met Partth Thakur, founder of The Wishing Factory, at an airport lounge and was impressed by his zeal and mission to prevent the spread of the disease. Says Sonakshi: “The work they do at The Wishing Factory in looking after the welfare of thalassemia patients is phenomenal.  A few months after meeting Partth, I visited their centre on Children’s Day last year and met some amazing people there. Since then, I have been actively supporting the organization in spreading awareness about thalassemia and adding my voice whenever needed.” Meanwhile Kunal Kapoor, who is the co-founder of Ketto, the crowdfunding platform which has been much in the news on account of its charitable activities, says: “Partth had reached out to me (for the thalassemia prevention campaign) through Ketto since his organization, The Wishing Factory, had been raising funds on the platform for over two years. A few thalassemia major patients had wished to meet me and spend some time with me (and I obliged). India has over 40 million thalassemia minor carriers and over 3 lakh thalassemia major patients. People who have thalassemia major have to face challenges throughout their lives, and their lifespan is significantly shorter. But the disease can be completely eradicated as has been done in several countries across the world. This can be done by ensuring that when two people are getting married or are starting a family they find out their thalassemia status, by having blood tests done.” Prevention is better than cure, it seems.

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